The experience of inflammatory bowel disease patients with healthcare A survey with the IEXPAC instrument
Por:
Marin-Jimenez, I, Casellas, F, Cortes, X, Garcia-Sepulcre, M, Julia, B, Cea-Calvo, L, Soto, N, Navarro-Correal, E, Saldana, R, de Toro, J, Galindo, M and Orozco D
Publicada:
1 abr 2019
Categoría:
Medicine (miscellaneous)
Resumen:
To assess inflammatory bowel disease (IBD) patients' experience of chronic illness care and the relationship with demographic and healthcare-related characteristics.
This cross-sectional survey used the Instrument to Evaluate the EXperience of PAtients with Chronic diseases (IEXPAC) questionnaire to identify parameters associated with a better healthcare experience for IBD patients. IEXPAC questionnaire responses are grouped into 3 factors - productive interactions, new relational model, and patient self-management, scoring from 0 (worst) to 10 (best experience). Scores were analyzed by bivariate comparisons and multiple linear regression models.
Surveys were returned by 341 of 575 patients (59.3%, mean age 46.8 (12.9) years, 48.2% women). Mean (SD) IEXPAC score was 5.9 (2.0); scores were higher for the productive interactions (7.7) and patient self-management factors (6.7) and much lower for the new relational model factor (2.2). Follow-up by a nurse, being seen by the same physician, and being treated with a lower number of medicines were associated with higher (better) overall patient experience score, and higher productive interactions and self-management factor scores. A higher productive interactions score was also associated with patients receiving medication subcutaneously or intravenously. Higher new relational model scores were associated with follow-up by a nurse, affiliation to a patients' association, receiving help from others for healthcare, a lower number of medicines and a higher educational level.
In patients with IBD, a better overall patient experience was associated with follow-up by a nurse, being seen by the same physician, and being treated with a lower number of medicines.
Filiaciones:
Marin-Jimenez, I:
Gregorio Maranon Univ Hosp, Gastroenterol Dept, IBD Unit, Madrid, Spain
Gregorio Maranon Univ Hosp, Clin Res Inst Gregorio Maranon IiSGM, Madrid, Spain
Casellas, F:
Hosp Univ Vall dHebron, Crohn Colitis Care Unit, Barcelona, Spain
Cortes, X:
Sagunto Hosp, Gastroenterol Unit, Valencia, Spain
Garcia-Sepulcre, M:
Elche Univ Hosp, Madrid, Spain
Julia, B:
Merck Sharp & Dohme Spain, Med Affairs Dept, Madrid, Spain
Cea-Calvo, L:
Merck Sharp & Dohme Spain, Med Affairs Dept, Madrid, Spain
Soto, N:
Merck Sharp & Dohme Spain, Med Affairs Dept, Madrid, Spain
Navarro-Correal, E:
Hosp Univ Vall dHebron, Crohn Colitis Care Unit, Barcelona, Spain
Saldana, R:
Confederat Patients Inflammatory Bowel Dis Spain, La Coruna, Spain
de Toro, J:
A Coruna Univ Hosp, Rheumatol Dept, La Coruna, Spain
Galindo, M:
Clin Univ Hosp, Valencia, Spain
Orozco D:
Miguel Hernandez Univ, Clin Med Dept, Alacant, Spain
Green Published, gold, Green Accepted
FULL TEXT
 |
Published Version |
CC BY 4.0
CC BY-SA 4.0
CC BY-ND 4.0
CC BY-NC 4.0
CC BY-NC-SA 4.0
CC BY-NC-ND 4.0 |
|
|