The NADYA-SENPE Home Enteral Nutrition Registry in Spain: years 2018 and 2019
Por:
Wanden-Berghe C, Campos Martín C, Álvarez Hernández J, Burgos Peláez R, Matía Martín P, Cuerda Compés C, Lobo G, Martínez Olmos MÁ, De Luis Román DA, Palma Milla S, Gonzalo Marín M, Padín López S, Luengo Pérez LM, Santacruz Carmona N, Pintor de la Maza B, Suárez Llanos JP, Irles Rocamora JA, Forga Visa MT, Martín Palmero MÁ, Sánchez Sánchez R, Cardona Pera D, Tejera Pérez C, Ballesta Sánchez C, Higuera Pulgar I, Bonada Sanjaume A, Penacho Lázaro MÁ, Garde Orbaiz C, Arraiza Irigoyen C, Martín Folgueras T, Virgili Casas N, Cánovas Gaillemin B, Maíz Jiménez MI, Del Olmo García MD, Carabaña Pérez F, Parés Marimón RM, Morán López JM, Mauri Roca S, García Puente I, Sánchez-Vilar Burdiel O, García Delgado Y, Miserachs Aranda N, Calañas Continente A, Apezetxea Celaya A, Pereira Soto MÁ, Sánchez Martos EÁ and Ponce González MÁ
Publicada:
1 ene 2022
Ahead of Print:
25 ago 2021
Resumen:
Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the years 2018 and 2019. Material and methods: from January 1, 2018 to December 31, 2019 the home enteral nutrition registry was recorded, and afterwards a further descriptive and analytical analysis was done. Results: in 2018, 4756 active patients were registered and the prevalence was 101.79 patients per one million inhabitants; in 2019 there were 4633 patients with a prevalence of 98.51 patients per one million inhabitants. They originated in 46 hospitals: 51.3 % were male, and median age was 71.0 years in both periods. The most frequent diagnosis was a neurological disorder that presents with aphagia or severe dysphagia - 58.7 % and 58.2 %, respectively. The main cause of episode termination was death. A total of 116 pediatric patients were registered in 2018 and 115 in 2019. Females represented 57.8 % and 59.1 %, respectively, in each of the periods. Median age at the beginning of HEN was 5 and 7 months. The most commonly recordered diagnostic group (42.2 % and 42.6 %) was included within the other pathologies group, followed by neurological disorders that present with aphagia or severe dysphagia in 41.4 % and 41.7 % of children. The route of administration was gastrostomy in 46.6 % and 46.1 %, respectively, in each of the periods. Conclusions: the NED registry of the NADYA-SENPE group continues to operate uninterruptedly since its inception. The number of registered patients and the number of participating hospitals remained stable in the last biennium analyzed.
Filiaciones:
Wanden-Berghe C:
Hospital General Universitario de Alicante. Institut d'Investigació Sanitària i Biomèdica d'Alacant (ISABIAL-FISABIO)
Campos Martín C:
Hospital Universitario Virgen Macarena
Álvarez Hernández J:
Hospital Universitario Principe de Asturias
Burgos Peláez R:
Hospital Universitario Vall d'Hebron
Matía Martín P:
Hospital Clínico San Carlos. Instituto de Investigación Sanitaria del Hospital Clínico San Carlos (IdISSC)
Cuerda Compés C:
Hospital Universitario Gregorio Marañón
Lobo G:
Hospital Universitario Virgen de las Nieves
Martínez Olmos MÁ:
Complejo Hospitalario Universitario de Santiago (CHUS). ORCID: 0000-0002-3279-8091
De Luis Román DA:
Hospital Clínico Universitario de Valladolid
Palma Milla S:
Hospital Universitario La Paz
Gonzalo Marín M:
Hospital Regional Universitario Carlos Haya
Padín López S:
Hospital Universitario Infanta Cristina
Luengo Pérez LM:
Hospital Universitario General de Alicante
Santacruz Carmona N:
Hospital General Universitario de Alicante. Institut d'Investigació Sanitària i Biomèdica d'Alacant (ISABIAL-FISABIO)
Pintor de la Maza B:
Complejo Asistencial de León
Suárez Llanos JP:
Hospital Universitario Nuestra Señora de la Candelaria
Irles Rocamora JA:
Hospital Universitario Nuestra Señora de Valme
Forga Visa MT:
Hospital Clínic
Martín Palmero MÁ:
Hospital San Pedro
Sánchez Sánchez R:
Hospital Universitario Cruces
Cardona Pera D:
Hospital de la Santa Creu i Sant Pau
:
Hospital Universitari Sant Joan d'Alacant
Higuera Pulgar I:
Hospital Universitario General de Villalba
Bonada Sanjaume A:
Hospital Universitari Sant Joan de Reus
Penacho Lázaro MÁ:
Hospital El Bierzo
Garde Orbaiz C:
Hospital Universitario Donostia
Arraiza Irigoyen C:
Complejo Hospitalario de Jaén
Martín Folgueras T:
Hospital Universitario de Canarias
Virgili Casas N:
Hospital Universitari de Bellvitge
Cánovas Gaillemin B:
Hospital Virgen de la Salud
Maíz Jiménez MI:
Hospital Universitario 12 de Octubre
Del Olmo García MD:
Hospital Universitario Severo Ochoa
Carabaña Pérez F:
Hospital Universitario Ramón y Cajal
Parés Marimón RM:
Consorci Sanitari de l'Anoia
Morán López JM:
Hospital San Pedro de Alcántara
Mauri Roca S:
Hospital Universitari Dr. Josep Trueta
García Puente I:
Hospital Universitario de Gran Canaria Dr. Negrín
Sánchez-Vilar Burdiel O:
Hospital Universitario Fundación Jiménez Díaz
García Delgado Y:
Hospital Universitario Insular de Gran Canaria
Miserachs Aranda N:
Hospital Fundació Esperit Sant. Santa Coloma de Gramenet
Calañas Continente A:
Hospital Universitario Reina Sofía. ORCID: 0000-0002-2807-8761
Apezetxea Celaya A:
Hospital Universitario de Basurto. Bilbao
Pereira Soto MÁ:
Complejo Hospitalario Universitario de Santiago (CHUS)
Sánchez Martos EÁ:
Corporació Sanitària Parc Taulí
Ponce González MÁ:
Hospital Universitario Gran Canaria Dr. Negrín
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